November is Epilepsy Awareness Month have a look and see my Warrior Friends and my Angel Warriors that were taken away too soon.

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Did you see me? did you? did you? Thanks to Leah's Mammy for putting this video together Sín é

The Gift

Not feeling too hot

Mammy is worried as I am getting very skinny. My formula is not sitting great in my belly and I am not able to drink all of it in the day. In July when I was in the hospital they changed my formula on the keto diet and since then the pounds have been coming off. I am now only 32.5lbs compared to the 44lbs I was in July so we are going to see the Keto Doc on Monday. I cannot drink any more than 150 mls any more and I start to throw up and I am not supposed to be able to throw up because of the surgery I had on my belly. Now they get the sucko machine and suck all the junk out of the back of my throat other wise it is going back down in to my lungs. I don't like the sucko machine. Got my blue casts off and now I only have to wear the knee braces at night. Walter put new casts back on they are green after he made the molds for my new braces. So I have another few weeks then they will be off and I will be sporting my new braces. Mammy said she will have to take me shoe shopping for new sneakers when I get my new legs. Mammy has been pimping my new wheelchair again now I have pirate skulls on my head rest and chest harness. She went crazy in Joanne's and bought more fabric so I will have turkeys for Thanksgiving on my chair. She also bought more Halloween fabric to make me more bibs. Mammy is back making me nappies as I have a rash around my boy parts again and since I have lost the weight I am peeing out the leg of the throw away nappies. So she is doing loads and loads of washing between me throwing up the gunk and peeing on everything. She said she doesn't mind washing my nappies but wait and see what she will think when I leave a surprise in it for her. Oh well Sín é P.S. I will have her post more pictures of my new bibs and covers when she runs them through the sewing machine

Mammy was busy

Look she put some bling on my chair. She put sugar skulls on my headrest and on my chest harness on my new chair

Pictures from my latest surgery

Sun shining in my face

waiting

wearing my dress

legs marked

Leaving the hospital

home

Ah in my bed

Happy in my bed

Supporting Galway

Resting my leg

First shower since my surgery