Monday, December 10, 2018

December 9th 2018

Hi my lovey,
It's 14 years since we were told you were going to be different and have challenges before you were born but it never changed how I felt about you. You are mine, you are loved.
You have been a fighter since before you were born and we have weathered many a storm with you. We won't stop fighting for you as long as you fight. I know there will come a day when you don't want to fight any more and it will break my heart but we will have memories of the good days, memories of the not so good days and memories of even the bad days but we will have memories.
The changes we have seen in you this past year are unreal. Your personality has really bloomed and yeah I know you still don't talk but your facial expressions say so much. You have gained weight and have grown so much that you need all new shirts, pants and shoes. Oh shucks soon we won't be able to fib and get you in for child's rate as your face is changing from that little boy look in to the young man look. You are physically getting stronger. I guess all that floor time is really helping you tone up all your muscles and making you stronger. We discovered you love to go shopping and you don't really care where we go even if its just food shopping.
We went on holidays this year to Hilton Head and you had so much fun in the swimming pool.
We discovered that you don't really fit in the kiddy bicycle cart anymore so you didn't get to enjoy going bike riding in Hilton Head this year. I think we will have to invest in The Wike Large Special Needs Bicycle Trailer for you so you can enjoy bike riding with us on holiday.
You started 8th grade this year and you have a new teacher for home instruction. We had fun at Halloween and you were a fireman and we made your wheelchair in to a fire truck.You were Junior Engine 79 the Bronx.
You were a big hit and even the Firemen from Engine 79 came to visit you. The reason we chose Engine 79 is because its our local engine company. You even had lights and sirens on your truck. Here you are with your sister coming back from going trick or treat on the Avenue
.
So tomorrow is picture with Santa Claus we even talked Maurs and Eoghan into going with you for the picture.
We haven't made any plans yet for next year for our holidays but it doesn't make a difference as we will always have an adventure no matter where we go.

Sín é, mo ghrá
Love Mammy