Wow its been a week

Well other than having some seizures and an eye doctor appointment this week was a bit on the quiet side.

The eye appointment went like they all do come back in 4 mths. I have to get my eyes checked as a medicine I take can damage the eyes. Yes I know I don't have any vision but still its good to get them checked out to see what the long term effects the drug can have on anyone's eyes.

I kinda freaked Bonnie and Mammy out today. I had a seizure while asleep and I didn't wake up at all, cry or even my heart rate or O2 didn't change. Mammy said she will never sleep again after seeing that one today. All she kept saying "how many have we missed while he is asleep like that one?"

Today was Grandad's First Anniversary in Heaven. We all miss him. No more do I hear" How's my lad today?" and no one seems to rub my legs like he did.

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I'm a wee bit off

The last few days I have been having more seizures. Mammy is blaming the weather well we have been having a lot of thunder storms and you know she always says rain = seizures. Yesterday I had 3 bad ones and my usual little ones. Thankfully they stopped on their own and she didn't have to give me an up the butt. But she did say if I had another bad one I was getting it.

you know what? I had another bad one this morning. I was fast asleep when it happened to me and of course I ended up on oxygen but you know my heart rate was good. I am very sleepy but that happens when the weather changes or I have a few seizures so I guess its a combo of both.

Daddy is wrecked tired now well he did stay up with me while Mammy caught up on her sleep. You know she was on the computer at 4am this morning what happened to sleeping in? Mammy did put my music on for me. She always has it on cause when I feel good I like to sing along in my own way.

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Brothers

http://www.tennessean.com/article/20110613/LIFE01/306130018/Kids-triathlon-strengthens-brothers-bond

Please read

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Had surgery and now I am on the mend

My Mammy is really slacking here she is really falling behind updating my page.

Well I had my surgery last week on Monday and they found I had a hernia so after the doctor had wrapped my stomach around the bottom of my esophagus ( the pipe that brings the food from your mouth to your belly) he fixed my hernia. So I really had a 2 for 1 surgery. I now have 5 little plasters covering the new holes the doc put in my belly. Mammy made sure that they didn't give my morphine for the pain and she also told them no oxy either. They gave me other stuff and I didn't get sick and I feel so much better. Hey I might not be able to talk but my Mammy sure does know me.

I got to come home on Thursday and I am only taking Tylenol for pain. Had some therapy and I tried to pull a fast one by complaining but Mammy and Sy were not having any of it from me. Well he was only working on my legs and not hurting my belly.

Mammy has to get up every 2 hours to feed me so lets put it like this she isn't getting much sleep. I am being fed small amounts evey 2 hours. I am hungry but Mammy keeps telling me not to worry soon I will be back getting my usual feeds and I won't be hungry as my belly will be full.

I go to see my neuro tomorrow Mammy doesn't like the last increase in meds they made.Its the same as the last time they tired to put it up I drool like a tap running. Mammy is afraid that I will swallow too much in to my lungs so we will have to see what they say. She still didn't a call back from the doc that I have to see about the VNS so will see if Dr. A's office can get me an appointment.

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Finnian's new favourite song