I have been doing good the last bad seizure day was the day of my Communion. They have tweaked some of my medications a bit the pee doctor increased my Flomax because my pressures were up in my bladder. The movement Doc increased my Dystonia medication well I am still on a low dose but since we started the new increase I seem to be babbling and making more sounds hey you never know I might get my speech back and spastic tone I had in my good arm has decreased. I am able to stand with support of course and at times I am able to pull myself up in to a sitting position with help. These are huge improvements for me.
Oh well Sín é
Thursday, May 30, 2013
Finally an update
Can't believe its been so long since Mammy put up a post here. We have been busy with a lot of doctors appointments, school and therapies. The biggest news is I made my First Holy Communion on May 11th. That is a huge achievement for me well when you think back over the years and what the Doctors predicted YES IT'S A HUGE thing for me. Mammy and me went to Religion classes every Sunday morning just so I could make my Communion. My Mammy believes in me making my sacraments like any other child. Mind you some thought she was crazy but I am a baptized Catholic and I do go to Mass so why shouldn't I make my Communion? Boy was I all dressed up for my Communion didn't I look good?
I have been doing good the last bad seizure day was the day of my Communion. They have tweaked some of my medications a bit the pee doctor increased my Flomax because my pressures were up in my bladder. The movement Doc increased my Dystonia medication well I am still on a low dose but since we started the new increase I seem to be babbling and making more sounds hey you never know I might get my speech back and spastic tone I had in my good arm has decreased. I am able to stand with support of course and at times I am able to pull myself up in to a sitting position with help. These are huge improvements for me.
Oh well Sín é
I have been doing good the last bad seizure day was the day of my Communion. They have tweaked some of my medications a bit the pee doctor increased my Flomax because my pressures were up in my bladder. The movement Doc increased my Dystonia medication well I am still on a low dose but since we started the new increase I seem to be babbling and making more sounds hey you never know I might get my speech back and spastic tone I had in my good arm has decreased. I am able to stand with support of course and at times I am able to pull myself up in to a sitting position with help. These are huge improvements for me.
Oh well Sín é
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